March 2013

Tiara's Tuesday Talk – Preventing Aches & Pains

  Tiara’s Tuesday Talk – by Sara Sheibley Today is going to be a hash up. My mind can’t seem to settle on one specific topic so let’s get this party started. Mostly we are going to discuss how to try and prevent aches and pains and what to do to help if they happen. As always, you should always consult a doctor (podiatrist, orthopedic,  rheumatologist, primary care) before starting any exercise program. I know my doctor is excited because he tries to keep me active while balancing the side effects. So I think I’ll start with podiatry. They love… Read More »Tiara's Tuesday Talk – Preventing Aches & Pains

Musical Motivation Monday – Week Two

Musical Motivation Monday – by Heather Stewart “They won’t be fools or be victims Or fall along the way. They fight for life, these large strong birds, They won’t let it pass them by. Examples in our life should be. To fly where Eagles fly.” -excerpt from “Where Eagles Fly” by Helen E. Payne Spencer, Cherokee     Here we are, beginning another week of our journey. I have heard walkers say, “I’m not walking much” or “my numbers aren’t good”. Even I fell into this trap of self doubt when confronted by the millions of steps that Team Endurance… Read More »Musical Motivation Monday – Week Two

Sundays On A Walk With Michael – Week Two

Today’s walk-ku by Michael Smith double haiku: My walk tired me, I rested under a tree, my thoughts wandering. But my wandering thoughts did not rest. In fact, they went and ran ahead.       Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit… Read More »Sundays On A Walk With Michael – Week Two

Color Kynna & Susie's Sneakers

We’re Kickin’ It For Kynna & Steppin’ For Susie! Both Kynna & Susie have juvenile Ankylosing Spondylitis and we are walking for them and for the hope for a cure for everyone with this family of diseases. Please share their coloring pages with your kids – they want so much to support us and this supports not only Kynna & Susie but also their Mom or Dad, brother or sister, or friend. Please share their creations on our Facebook page and we’ll also put them here on our website in a gallery page.   Download Kynna’s Page      … Read More »Color Kynna & Susie's Sneakers

Wednesday Walker Spotlight – Joe Tidwell

Wednesday Walker Spotlight – Joe Tidwell by Kim Anderson   Joe Tidwell started feeling severe back pain when he was 12 or 13 years old. The pain was so intense that he would often stay home from school and lay in bed. The doctors that he sought help from at that time did not think that there was anything wrong with him. By the time he got into high school, the doctors would tell his mother, Cindy, that the pain was “all in Joe’s head” and that he was simply trying to get out of going to school. His mother, being… Read More »Wednesday Walker Spotlight – Joe Tidwell

Tiara's Tuesday Talk – Assistive Devices

That’s right it’s Tuesday again and time for me to throw some exciting information at you about Assistive Devices for Walking. Recently I had to battle some demons of my own in this department and have decided, a cane is better than a fall. So, to educate you on this week’s subject matter I went to the world wide webby and found some pictures of all kinds of devices you can use. I knew about most of these however they certainly have way more than I thought before. So I educated myself to better serve you! Let’s start with canes.… Read More »Tiara's Tuesday Talk – Assistive Devices

Musical Motivation Monday – Week One

It’s MONDAY!!! Day 4 of our journey to the moon. Every journey begins with that first step. We are like children learning to stand; we need something to hold on to, to brace us as we pull ourselves up and get our feet under us so that we can take that first step.  This walk, Walk Your A.S. Off, is our something sturdy, that we will be holding on to as we gain the courage to stand and then walk for ourselves, our friends, our loved ones, and those around the world who have Ankylosing Spondylitis. Raising awareness for a… Read More »Musical Motivation Monday – Week One

Sundays On A Walk With Michael Smith – Week One

  Today’s walk-ku by Michael Smith My feet meet the road. The road is cordial … at first. Then things get bumpy.     Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit the Spondylitis Association of America. His current AS awareness project can be seen… Read More »Sundays On A Walk With Michael Smith – Week One

A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente

I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in a way so many cannot even begin to imagine. And yet, his spirit soars – uncaged – it takes flight through his kind acts and most especially through his talent with a paint brush. Ivan asked me if he could walk for Walk Your A.S.… Read More »A Walk in Malita, Davao Del Sur, Philippines With Ivanhoe Ardiente