March 2015

I’m Your Puppet

In 1966, two years before giving birth, James and  Bobby Purify (and R&B Duo) released the song I’m Your Puppet. The opening lyrics go like this, Pull the string and I’ll wink at you. I’m your puppet. I’ll do funny things if you want me to, I’m your puppet. Enduring a radical autoimmune disease and attempting to live some sort of normal life, I often feel like a puppet. Here, pull this string and I’ll make the bed. Now tug the string and I’ll get to the grocers. Yank that one right there and I will do whatever you want,… Read More »I’m Your Puppet

Why I Walk; Why You Walk

Why I Walk for Walk Your A.S. Off Why do I walk? I walk because I have to. I walk because walking is a fundamental action that on certain days seems impossible to me. I walk because spending a few weeks counting my steps, managing a team and encouraging others is what I do. Why do you walk? Well, if you don’t have A.S. you are walking in support of someone, most likely someone you know and maybe even love. If you are on my team, you are walking for me. You might be walking to pay me back for… Read More »Why I Walk; Why You Walk

I'm Mad As Hell!

I’m mad as hell and I’m not going to take it anymore! Frankly, this isn’t something that I get ‘mad as hell’ about. Perhaps I should. Decisions are being made about which medicine you have access to. It’s not based on science. It’s not based on evidence. It’s not your doctor’s decision. You do have a choice. Your choice is ‘take it or leave it.’ If you can afford to pay nearly $20,000USD a year for medicine, then you have more choices. ‘Advocacy’ and ‘public policy’ doesn’t usually stir much anger or emotion from me. Perhaps they should. In states… Read More »I'm Mad As Hell!

When I get knocked down…

As many of you know, dealing with A.S. can be quite a battle. A few nights ago, I was walking in my bedroom when I slipped and fell to the ground. Thankfully, I landed on the carpet, but it still was not a good feeling especially because I was in the midst of a bad flare. As I lay on the ground, frustrated, in tears, feeling defeated, and unable to pick myself up, I realized something. Throughout a lifetime of dealing with A.S., there are many times where we can feel beat up and knocked down. However, if we allow… Read More »When I get knocked down…

Welcome New Walk Blogger Nicole Maher

Teams are beginning to register for our 2015 spring event and the weather seems to be getting better for many. As we prepare for our fourth year we are looking for bloggers to post about our walk, awareness activities, team highlights, general information about Spondylitis, and possible gear reviews. If you are interested please email walkyourasoff@gmail.com. Please join us in welcoming Nicole Maher – she will be blogging on Wednesday’s. Here is her first post:   Are you ready to Walk Your A.S. off in a few weeks? My name is Nicole Maher and I live in Southwest Florida. After years… Read More »Welcome New Walk Blogger Nicole Maher