May 2015

We Count Things That Are Important

Did you count your steps today? Are you more mindful of your steps now that you have been counting them? This is weird, but I count people in a room. It’s a habit I was taught. I started working with kids when I was fourteen. As a camp counselor, youth groups counselor, teacher and as a director of informal education and camps, when you’re loading the bus coming back from a beach trip, you better know that you have everyone. When you’re working with teens on a camping trip, you better not be missing two at any time. I’m also pretty… Read More »We Count Things That Are Important

WYASO Round-Up: Week 3

Welcome to the third WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. If you didn’t catch our other round-ups, you can read week one and week two by clicking on the links. The LOVE Run in Taipei – The Walking Spondies Carrie of The Walking Spondies writes about raising awareness in Taipei, Taiwan. “On May 15, 2015, two members from The Walking Spondies participated in the LOVE Run in Taipei, Taiwan to help raise awareness for Ankylosing Spondylitis and associated diseases. Together, they logged over 30,000 steps… Read More »WYASO Round-Up: Week 3

WYASO Round-Up – Week 2

Welcome to the second WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. So with out further ado, we’ll jump straight to it. World Autoimmune Arthritis Day 2015 WAAD2015 is a global online nonprofit car race around the world of social media and internet. The aim is to put the spotlight on educational resources, as well as catapult global awareness for all types of autoimmune arthritis. This year member of WYASO are competing under the team name Walk AS One. And we need… Read More »WYASO Round-Up – Week 2

The LOVE Run in Taipei – The Walking Spondies

On May 15, 2015, two members from The Walking Spondies participated in the LOVE Run in Taipei, Taiwan to help raise awareness for Ankylosing Spondylitis and associated diseases. Together, they logged over 30,000 steps during their race for our team. David Mitchell from Scotland and Saou-Wen Su from Taiwan, along with over 3,000 other marathoners, began their race at 7am on Saturday morning. David completed the half-marathon 21km course in under two hours. He placed 37th out of 3020 participants. Woo-hoo, David! What an incredible accomplishment. During that time, he logged 22,052 steps for our team. Saou-Wen ran the 7km course and donated 7,797 steps. Way… Read More »The LOVE Run in Taipei – The Walking Spondies

Coping with Grief and AS

I was planning on writing about how people with chronically painful illnesses are dimensional and should not only be viewed through the lens of their disease…and it would have been a mighty post and it would have inspired many, but in fact, that’s not my mindset right now. Right now I am in grieving. I am grieving the person I used to be…the person that once was. As soon as I was diagnosed with Ankylosing Spondylitis, a new realm of support opened for me with my healthcare providing system of insurance-izzle HMO. I belong to a large HMO that really… Read More »Coping with Grief and AS

Why Walk?

Why walk? Walking can be really tough. There was a time when my AS felt horrible after walking, even high impact activity such as running felt better. When you have a spondylitis disease, any and all activity feels completely out of the question at times. There are days when I force myself to do exercise and I’m still a ball of pain. Flares can be very stubborn. If it feels so bad to move, why do it? Because it feels worse not to. Every time I’ve given myself a break from exercise, it’s made me feel worse and flares last… Read More »Why Walk?

Spread The Word: Educate Others About AS

One of my favorite things to do to relax is to have a massage. No matter how stressful or exciting my day is, I can always relax during a one-hour Swedish or hot stone massage and they really help lower my pain level. I try to get one monthly, but this does not always happen. Yesterday, before my massage, the therapist asked me if there were any particular areas I would like to work on. I couldn’t help but laugh…I mean, come on, with A.S. everything hurts, right? As usual, I told her I have chronic pain just about everywhere, but… Read More »Spread The Word: Educate Others About AS

WYASO Round-Up – Week 1

Welcome to the first round-up of the WYASO main event. The round-up is our way of sharing what others in the WYASO community are sharing and talking about. If you would like your blog post / video / newspaper article to be featured on the next round-up, please can you send us the link via email or leave a comment below.   70 Facts About My Invisible Illness You Might Not Know Carrie from The Walking Spondies on the facts of her invisible illness. “Despite the fact that this blog and my activity on social media has brought me into the public… Read More »WYASO Round-Up – Week 1

Walker Spotlight – Mr & Mrs Peterson

With each year that has passed Walk Your AS Off has grown. Every year we add new teams and new walkers to our community. This year has been no exception. I’d like to introduce you to two of our newest walkers, husband and wife, John and Denise Peterson.  Both are members of the team ‘Making Trax’, which is captained by Ricky White. How did you come to find out about the Walk Your AS Off? “I met Ricky while playing online chess at Chess.com in our group called The Friendly Knights. We had been playing back and forth for maybe… Read More »Walker Spotlight – Mr & Mrs Peterson

May The Fourth Be With You…

May 4, 2015 I birthed a Star Wars Geek. He is almost 9 years old and Stars Wars is his SPARK. He is a sponge when it comes to anything Star Wars, so that means that his mama (me) has by default come to know more about Star Wars that she ever though possible. A bit of background…Star Wars came out long before the 24-hour news cycle, before TV shows like Entertainment Tonight or entire cable channels devoted to “entertainment.” So when Star Wars premiered in the spring of 1977, it was advertised mostly by word of mouth. People of… Read More »May The Fourth Be With You…