Guest Post by Karen Fitch, Team Captain of Fitch Feet What’s your new normal? Do you have one of those quadruple pill sorters like I do? Maybe you have your infusion appointments logged into you smartphone’s calendar? Possibly you are spending the next few hours wrapped up in bed with a heating pad? Perhaps you are eating a bowl of chocolate peanut butter ice cream because it’s the only 19 minutes of joy in your life today? Feasibly, you’re playing gin rummy with your kid because it is all you can manage to do as playing catch in the backyard… Read More »What's Your New Normal?
Many times we address the needs of those of us with Ankylosing Spondylitis and we fail to acknowledge the people in our lives that act as caregivers and support systems. We all have at least one person – a partner, a parent, or a friend that we turn to when we are in a flare or just in need of assistance. When I looked around myself and other members of the Walk AS One Board and I noticed that many of my fellow board members have partners they can rely on. I have my mother and other family and friends,… Read More »Recognizing Caregiver Burnout: We Thank You and Salute You!
It’s that time of year, the Holidays. We always end up trying to figure out how to not end up in a flare. So, I asked some of my chronically-ill friends what they do or what best practices they would share with others. Avoid people It seems a little anti-social doesn’t it for such a social time but it is great advice. Try to avoid large crowds. I know we’re already after one of the major shopping days here in the US but you can still get caught up in the crowds. One way to avoid the crowds is to… Read More »Five Tips for Staying Flare Free Over the Holidays
The Walk AS One community stood tall this year to raise awareness for Ankylosing Spondylitis on World Arthritis Day 2016. Our teams walked 1,287,797 steps in ONE DAY to raise awareness for Ankylosing Spondylitis on World Arthritis Day, which was on October 12, 2016. Our Not-So-Silent auction raised the money we need to redo our Walk Your AS Off site with an integrated step count system with FitBit, so we’re going to be starting on that shortly. Our site will be much easier to manage for Walk Your AS Off 2017, so get ready for our best year yet! It’s… Read More »Walk Your AS Off World Arthritis Day 2016 – RECAP
I’d never given Mount Fuji a thought before I came to Japan. Even when I arrived here nearly a year ago it seemed a vague and unattainable thing; something merely depicted in art, pictures, and advertisements. Most of the people I asked about it had only seen the mountain from afar. Yet somehow the hair-brained idea of climbing Fuji slowly but surely crept into my mind. I was diagnosed with Ankylosing Spondylitis(AS) my senior year of high school. With lots of patience, and lots of Enbrel, I was able to get it under control, and had the privilege of studying… Read More »How I Walked My AS Off — Charlotte's Story of Climbing Mt. Fuji
This past year I have felt that I’ve continually taken one step forward and two steps back. The optimist in me hates to be thinking this way but sometimes we have to own it and acknowledge it to move forward again. After the amazing 2014 year of Walk Your AS Off, a group of us decided it was beyond the time to take our community project to the next level. We realized that for us to be able to best service the AS community through the walk that we needed to incorporate and then become a US based non-profit… Read More »One step forward!
Our amazing board has been taking a bit of a hiatus since Walk Your AS Off 2016. It takes an enormous amount of team effort to organize our walk each year and we do it with a very small team and virtually no budget. In an effort to get things rolling again, we are going to start delivering some fresh, new, INSPIRING content to you each Wednesday. I’m kicking things off this week by offering this advice: Never Give Up. So, I have a little story to share with you first. Less than 10 days ago, I came home to Taiwan… Read More »15 Reasons To Never Give Up
Congratulations steppers for crossing the finish line. You should all be very proud of yourselves. This is a run-down of the stats from this year’s walk. Now although Walk Your AS Off is an awareness event, and it’s not a race, we do like to keep track of how our teams are doing. Nothing wrong with a little friendly inter-team completion, right? I do hope you got from the walk what you wanted. We welcome all feedback, whether positive or negative, as we are always looking at ways to make the walk bigger and better for the Ankylosing Spondylitis community.… Read More »And the results are in! — This years stats
Our team, Torus Ankylosaurus, celebrated crossing the finish line on May 31st, 2016! This is our second annual WYASO celebration and it won’t be our last. We stuck with a blue and orange theme again for our celebration. (It’s hard to change it up, lol!) We had blue cheese burgers and blue claw crab, candied carrots, orange mango salsa with blue chips and, of course, orange and blue mixed drinks! We had a great time playing board games and dancing! We ended the day with cake, a movie, and some gifts that I was not expecting! I have always been a science… Read More »Team Spotlight 2016: Torus Ankylosaurus
May 4rd to May 15th Step Stats Hello, everyone. We have been pretty busy here at Walk AS One, but we haven’t been neglecting our step stats. These are the team stats for May 4th to May 15th 2016. We have two weeks left to walk our AS off, and we want to hear from you. If you have a story that you would like to share or a photo, please contact us at email@example.com! It’s interesting to note that our top teams have all doubled their team step counts in just a few short weeks. The Orange Apples, led… Read More »Stars To Mars Step Stats – May 4th to May 15th