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Walk AS One World Cup: An Interview with the Winners – reFUSE to Lose

This year was the very first Walk AS One World Cup! There were two separate categories in this years cup, which were for the total number of team steps, and the total average steps per walker. I got in touch with Jessica Cuccio, the team captain of reFUSE to Lose, and winners of this years total average steps Cup, to talk about their experience in this years WYASO.   Congratulation on winning the Cup for the highest average steps per person.  Have you had a chance to celebrate a successful WYASO yet? If so, how did you celebrate? I am so… Read More »Walk AS One World Cup: An Interview with the Winners – reFUSE to Lose

And the 2015 Walk AS One World Cup Goes To…

What a year we’ve had!   Congratulations to our first ever winners of the Walk AS One World Cup! Going forward we will hone in on our categories for these recognition awards as we get better at bringing in data from our teams. For this year we have awarded two cups based on the following two categories: 1. Total Number of Steps – reported by one team during the Walk Your A.S. Off walking season of April and May of 2015. – This year that award goes to the Orange Apples based in the United Kingdom and captained by Gillian… Read More »And the 2015 Walk AS One World Cup Goes To…

WYASO Round-Up Finale 2015

Welcome to the final round-up of the WYASO main event. We do hope you had a wonderful time participating in this years walk, and we hope you achieved your own personal goals too. We’d like to thank everyone for their hard work and dedication to raising awareness for AS. Without the support of each and everyone of you there would be no WYASO. You make this the success it is, and we are truly grateful. Walk AS One at the Rose Parade, Oregon. Bree Trejo and members of her WYASO team Perseverance Warriors, walked under our new global charity name, Walk… Read More »WYASO Round-Up Finale 2015

The Walking Spondies: Jungle Trekking in Thailand

Team Captain’s Note from Carrie Kellenberger: I’d like to introduce my friends, Dean and Hedway. They recently vacationed in Thailand and were kind enough to think of contributing a massive hike in Thailand for The Walking Spondies. Thank you both so much for even entertaining the thought of doing a hike for The Walking Spondies this month while you were vacationing in beautiful Thailand. We appreciate your support so much. I’ve done a number of jungle treks in Asia. This one looks terrifying, but what an incredible view! Here is Dean’s recap: I wanted to use some of my time on vacation… Read More »The Walking Spondies: Jungle Trekking in Thailand

We Count Things That Are Important

Did you count your steps today? Are you more mindful of your steps now that you have been counting them? This is weird, but I count people in a room. It’s a habit I was taught. I started working with kids when I was fourteen. As a camp counselor, youth groups counselor, teacher and as a director of informal education and camps, when you’re loading the bus coming back from a beach trip, you better know that you have everyone. When you’re working with teens on a camping trip, you better not be missing two at any time. I’m also pretty… Read More »We Count Things That Are Important

WYASO Round-Up: Week 3

Welcome to the third WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. If you didn’t catch our other round-ups, you can read week one and week two by clicking on the links. The LOVE Run in Taipei – The Walking Spondies Carrie of The Walking Spondies writes about raising awareness in Taipei, Taiwan. “On May 15, 2015, two members from The Walking Spondies participated in the LOVE Run in Taipei, Taiwan to help raise awareness for Ankylosing Spondylitis and associated diseases. Together, they logged over 30,000 steps… Read More »WYASO Round-Up: Week 3

WYASO Round-Up – Week 2

Welcome to the second WYASO Round-Up. This is your chance to catch up on all the amazing things that the WYASO community have been up to in the last week. So with out further ado, we’ll jump straight to it. World Autoimmune Arthritis Day 2015 WAAD2015 is a global online nonprofit car race around the world of social media and internet. The aim is to put the spotlight on educational resources, as well as catapult global awareness for all types of autoimmune arthritis. This year member of WYASO are competing under the team name Walk AS One. And we need… Read More »WYASO Round-Up – Week 2

The LOVE Run in Taipei – The Walking Spondies

On May 15, 2015, two members from The Walking Spondies participated in the LOVE Run in Taipei, Taiwan to help raise awareness for Ankylosing Spondylitis and associated diseases. Together, they logged over 30,000 steps during their race for our team. David Mitchell from Scotland and Saou-Wen Su from Taiwan, along with over 3,000 other marathoners, began their race at 7am on Saturday morning. David completed the half-marathon 21km course in under two hours. He placed 37th out of 3020 participants. Woo-hoo, David! What an incredible accomplishment. During that time, he logged 22,052 steps for our team. Saou-Wen ran the 7km course and donated 7,797 steps. Way… Read More »The LOVE Run in Taipei – The Walking Spondies

Coping with Grief and AS

I was planning on writing about how people with chronically painful illnesses are dimensional and should not only be viewed through the lens of their disease…and it would have been a mighty post and it would have inspired many, but in fact, that’s not my mindset right now. Right now I am in grieving. I am grieving the person I used to be…the person that once was. As soon as I was diagnosed with Ankylosing Spondylitis, a new realm of support opened for me with my healthcare providing system of insurance-izzle HMO. I belong to a large HMO that really… Read More »Coping with Grief and AS

Why Walk?

Why walk? Walking can be really tough. There was a time when my AS felt horrible after walking, even high impact activity such as running felt better. When you have a spondylitis disease, any and all activity feels completely out of the question at times. There are days when I force myself to do exercise and I’m still a ball of pain. Flares can be very stubborn. If it feels so bad to move, why do it? Because it feels worse not to. Every time I’ve given myself a break from exercise, it’s made me feel worse and flares last… Read More »Why Walk?