One step forward!

 

one-step-forwardThis past year I have felt that I’ve continually taken one step forward and two steps back. The optimist in me hates to be thinking this way but sometimes we have to own it and acknowledge it to move forward again.

After the amazing 2014 year of Walk Your AS Off, a group of us decided it was beyond the time to take our community project to the next level. We realized that for us to be able to best service the AS community through the walk that we needed to incorporate and then become a US based non-profit organization. This core group consisting of Carrie, Ricky, Heather, Kelly, Adam, and me would become the new board of Walk AS One! The name – a spin off of the event we had been holding since 2011 by virtually connecting online and logging our collective steps taken on streets and trails all over the globe.

Our vision has been strong but our bodies and stamina not always enough to get us where we wanted to be on our path by our self imposed deadlines. We’ve made great strides but I know the six of us all feel the way so many do when they have a chronic disease – that we can never accomplish what we could if we were living a life without Ankylosing Spondylitis. These feelings eek out of all of us from time to time as we apologize to one another that something didn’t happen or get created or communicated as we planned and hoped.stay the course 2

I have personally felt a huge amount of guilt over my visibility, communication, and participation over this last year as I took on a new and very challenging career in real estate. I know the rest of the board has expressed similar feelings of letting each other and the community down because our bandwidth and energies can only go so far with all that we cope with to simply manage our personal lives. This guilt is awful – we all remind one another when it sneaks into our thinking that we are all doing the best we can – and that is enough! Even though we all often feel like we take one step forward and then two steps back, as a group of 6 people we’ve bonded through this process to such a tremendous extent that we will keep taking a step – when we are able, when we are strong, even, when we are weak. We will do it because we believe in walking together, as one, to make our vision a reality.

I hope as we continue to progress with this 100% ASer volunteer run, soon to be an official 501c3, that you will join us. The literal and figurative steps we all take together (no matter which direction) are huge successes because we aren’t letting AS beat us! Our steps taken in growing this organization mirror our walker’s challenges and fears: Can we do it? Will we stumble?

What if we fail… what if we fall?

These are the questions and internal dialogs we all share whether on the board or taking the first or one millionth donated step and it isn’t unique to people with AS.

Don't give upWe may falter a bit on our journey and have times we are more or less productive but we promise you and one another that we will fight through the difficulties to be here for you – the AS community we all love and respect so very much.

Please keep your eyes open for our weekly Wednesday posts – a pledge we’ve recently made to one another to stay connected to the community as we work through these next steps in our growth. We have World Arthritis Day coming up in October and we will be discussing how we will be participating this year. If you have ideas please email us at info@walkASone.org and if you would like to join our volunteer group, please sign up HERE. We are looking for someone who can be our volunteer coordinator. It is a volunteer position – as everyone is with this organization but we’re an awesome and understanding crew (if I do say so myself!).

We’re growing and need lots of help to make sure we’re taking more steps forward than back!

Please feel free to contact me, Jennifer Visscher at jennifer.visscher@walkASone.org with any suggestions, thoughts, or wishes to donate time or money!

Thank you so much for being a part of our vision and future!

JennaSigSm

 

 

 

 

 

 

Jennifer Dye Visscher (Jenna)

Founder and CEO, Walk AS One

 

 

 

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Jennifer Visscher

Director and Founder at Walk Your A.S. Off
Jennifer Dye Visscher started Walk Your A.S. Off in 2012 after realizing her work was not done after completing a year long AS awareness campaign called Art Apple A Day. During that year Jenna created a piece of art of an apple every day for a year to help raise awareness of the disease she and nearly 33 million people worldwide struggle with - Ankylosing Spondylitis. When Jenna is not developing and growing the soon to be non-profit, Walk AS One (the name of the organization this walk and others will be run under), she is a real estate agent in Maine where she lives with her husband Doug, their dog Ella and a not so little cat named Bitty.

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2 Comments

  1. Michael Smith

    on August 18, 2016 at 7:48 am

    Reply

    Jenna, we are all vulnerable and fallible, even those without a chronic illness. Do not waste time on guilt about not accomplishing as much as you hoped. Our efforts towards a positive goal are themselves the reward. Don’t beat yourself up for falling short of goals. Goals are targets, not demands for perfection. We aim and make efforts, then we either hit the target or we don’t. if we don’t, our efforts have, at least, brought us to a better understanding of what we need to do the next time. That’s all anyone can do; keep aiming for the target and giving it our best shot.
    Do not fret. Just do. Inspire others and they will inspire you in return. Healthy people fail in their efforts too sometimes. Chronic illness is just window dressing. Our souls strive in the same way no matter the physical manifestations.

    Keep on, keeping on.

    M.

  2. Cookie

    on August 18, 2016 at 10:13 am

    Reply

    Okay Ms Jenna, I need to put my two cents in… I read your post and loved the honesty and straightforwardness of it. It was difficult to see all of your struggles and feelings of guilt of letting the AS community down. Believe me I get that and have to remind myself I am doing the best I can. The quote Sean shared with me years ago “Happiness is forgiving yourself for being human” has been a life saver for me, physically and emotionally. But I wanted to share with you what I seen in your post and the message that I took away from it.
    You know me I am the strange one who sees things so differently than most.
    The post for me anyway was the TRUE representation of what WALK YOUR AS OFF is.
    What Walk’s message is and will always be, and your heartfelt post reinforces that.
    Walk Your AS Off has always come from a place of encouragement to better ourselves.
    Walk has always stressed you didn’t have to compete but just do something, anything, you can.
    Walk has celebrated the success of 100 steps of one person as much as it has celebrated the million steps of a group.
    Walk’s message has been and will always be about DOING THE BEST YOU CAN, no matter what.
    Each step COUNTS, each effort counts, each step forward and each step backward counts.
    I hope this post will reinforce to everyone who feels that WALK was a competition of who can do the best realizes it’s an effort of people going through the same thing you are wanting to BEAT AS ONE STEP AT A TIME, one victory or failure at a time.
    That the real mission is being able to look at yourself in the mirror and KNOW you are doing the best you can. Period. That being REAL about yourself and your struggles and victories is the greatest gift you can give to yourself.
    Never ever let anyone make you feel that your best is not good enough, no matter what it is your best and you can’t do better than your best.
    My hats off to all of you.

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