advocacy

What's Your New Normal?

Guest Post by Karen Fitch, Team Captain of Fitch Feet What’s your new normal? Do you have one of those quadruple pill sorters like I do? Maybe you have your infusion appointments logged into you smartphone’s calendar? Possibly you are spending the next few hours wrapped up in bed with a heating pad? Perhaps you are eating a bowl of chocolate peanut butter ice cream because it’s the only 19 minutes of joy in your life today? Feasibly, you’re playing gin rummy with your kid because it is all you can manage to do as playing catch in the backyard… Read More »What's Your New Normal?

An Honest Appeal

Greetings My People, Take a breath, a moment and please read this. I know this time of year I’m a broken record. “Join Rockin’ Weebles: Weebles Kick A.S.!” All I am trying to do is shed some light on the disease that I and so many others have. It isn’t going away. It’s scary for us. It gets worse every day. Every day we learn of other diseases/complications we have to be aware of as our body attacks itself. Every now and then we go through the grieving process for aspects of our life that we once enjoyed vanishing beyond… Read More »An Honest Appeal

I'm Mad As Hell!

I’m mad as hell and I’m not going to take it anymore! Frankly, this isn’t something that I get ‘mad as hell’ about. Perhaps I should. Decisions are being made about which medicine you have access to. It’s not based on science. It’s not based on evidence. It’s not your doctor’s decision. You do have a choice. Your choice is ‘take it or leave it.’ If you can afford to pay nearly $20,000USD a year for medicine, then you have more choices. ‘Advocacy’ and ‘public policy’ doesn’t usually stir much anger or emotion from me. Perhaps they should. In states… Read More »I'm Mad As Hell!