Tiara's Tuesday Talk – We Live, We Learn, We Go On…

Tiara’s Tuesday Talk – by Sara Sheibley


Sometimes I should really pay attention to my own words. I type them, I read them yet I don’t heed them. This is how the story often goes, but this time I did myself in. For some reason even though I knew I was going to be busy, I knew it was a full day, I knew, I knew, I knew… And now…
I wish but any way, I didn’t take my own advice. I was trying to do too much! Am I glad I cracked a new high for steps? Yep… 23,301 steps in one day however, I trashed my hip! Now mind you it didn’t hurt that bad while I was doing it. I kept active all day, I was doing general walking and I didn’t necessarily do anything that alone would have hurt it. It was the combination of a LOT of walking, a LOT of standing and too many hours on my feet.
By Sunday my hip was already on vacation and I spent more time sitting down than I wanted to. (And if by sitting down I mean hosting a Mary Kay party at my house for  10 ladies plus 2 and making a birthday dinner for  my third 21 year old… then I was sitting.)
Why do I NOT listen? Simple. I’m bad at it. I know I shouldn’t be out or even up late as a chronically ill patient but that allure of FingerFriendspretending to be normal for a day was just too much to bear. So I went out… With friends…  (Yes I have some of those and they aren’t all fingers.) And while friendship and camaraderie can go a long way to make you feel more like a human when you don’t always feel quite like one, it can lull you into the false sense of being “normal”.
Now I’m not saying sick people aren’t normal, but we certainly don’t all live normal lives. I mean, how many of us have to pre-plan a trip to the doctor’s around all their other activities so they aren’t too tired to cook or fold wash? Or breathe?
Now let’s say I did listen to my own advice. I’ll give you a moment to stop laughing……………..
What would I have done differently? I may have worn a support device like this, which is the lovely SI joint support belt.  When I SIbeltgot home I would have iced my hip for 20 minutes then applied heat for 20 minutes. Or the various lotions and creams on the market. This name is my favorite.
Either way it just shows that sometimes no matter how much information we have, we just don’t follow what it says. One thing that we do need to listen and remember is that this isn’t a race or a competition. Each of us take steps in our own stride, our own time and do as much as our body will allow. Whether it’s two steps or 2,000 we only want them if you are not causing harm to yourself in the processes. We live, we learn, we go on…
And then we do it again.
SaraSheibleySara Sheibley is a wife and mother of four.  Through out most of her life she has dealt with chronic illness. Born with small fiber axonal polyneuropathy, she had aches and pains early on but wasn’t diagnosed with AS until 2008. Since then she has had to champion her own cause after she developed hemalytic anemia from treatments. Although she suffers with more than just AS, she feels that this is her primary illness and wants to be active in helping the cause. Sara & her Tiara’s Tuesday Talk will discuss a myriad of topics from assistive devices to walking help when you have other illnesses to consider.

2 thoughts on “Tiara's Tuesday Talk – We Live, We Learn, We Go On…

  1. Cherryl Dean says:

    I couldn’t have said this better. You’re right on target, about this. I can’t tell you, how often, or how many times I’ve done the exact thing, or experienced the same thing.I ‘m getting a little better, at being more aware, of this yo-yo effect it has on my body and health. However I’m still guilty, of doing it, from time, to time. Wanting to be somewhat normal is only being human. Thank you, for sharing your story. Prayers and hugs, for better days. Cherryl Dean

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