I recently opened the website for this very walk and saw “walking to raise awareness” because that is all that fit in the tiny window of my mini-computer. Of course the end says “of Ankylosing Spondylitis” which we are. We are also raising awareness in ourselves. In these 341 million steps we have walked I’m sure you have learned a bit more about the AS community, the people walking it, running it and literally running it (the people behind the walk) and even a little bit about yourself. First off let me say a huge “WAY TO GO!” for all… Read More »Tiara's Tuesday Talk – Walk on brave soldiers, WALK ON!
What an amazing job everyone! Here’s the break down: Total: 341,341,683 People: 330,649,767 Paws: 10,691,916 Let’s finish strong! We’re averaging around 63 million steps per week which is just awesome everyone! We have a couple of big walk events coming up that will add some pretty big numbers but I’d love if we could hit a BILLION steps this year (might be a stretch but we’ll be posting some ways to get additional donations in the next couple of weeks). Last year we took 654,568,770 collective steps. Do you think we can hit a BILLION this year? For… Read More »Step Totals – Week 1 Through Week 6
This week has been rough due to a lot of personal stuff going on but on the good side all this running here and there did lead to a pretty awesome step count week. Thanks to loads of activity with loads of stress, my body aches EVERYWHERE. Then there is the weather. Almost 80 today and they are calling for flurries Wednesday in the very early morning hours or as other people still consider it, night time. Humidity, no humidity. Cool day, warm day. Rain clouds but no rain. Of course it has been great weather for the Cherry Blossoms… Read More »Tiara's Tuesday Talk – Step Conversions
I’m not sure how to begin this but I’ve pondered it for too long so – here we go… Dear Walk Participants, I want to apologize to everyone for not being as involved in the walk this year as you all deserve me to be. I could go into the reasons why – but I’ll spare you the details. Suffice it to say – AS has had its way with me lately and I’ve been struggling to do just about everything my life needs of me. So as it goes – everything has been affected and not accomplished to… Read More »A Message From Jennifer Visscher On Our 2014 Walk
Team Spotlight – A.S. Standing Tall Together by Joyce Lameire Meet Michelle Fitch. Michelle decided to do a walk team with her co captain Colleen Vasquez for their support group they run on Facebook to help raise awareness for AS. “This is our second year participating in the walk. This year we have over 60 walkers and our amazing Wee Walkers, which includes my grandson Dominik who is 2 and Colleen’s daycare kids, 8 years and younger.” “We hope to involve more family and friends and others who don’t have AS to help us spread awareness this year.” She had 4… Read More »Team Spotlight: A.S. – Standing Tall Together
I spent most of Sunday on my butt and whilst there I was hemming and hawing over what to write. I mean, I feel like I need to give 5 days of thought, 1 day to chill about it and about an hour to actually type something (if that…). One thing that came to mind and I kind of played around with was this. ↑ errrr…. More like ↗. Never give up. I’m stubborn. I know those who know me well are hardly shocked by this revelation but for everyone else just play along like it’s shocking. Somewhere, somehow, someone… Read More »Tiara's Tuesday Talk – The Rewards Of Not Giving Up!
Tiara’s Tuesday Talk – by Sara Sheibley Lots of things are great as a half… That half a sandwich and a cup of soup deal, half of an oreo cookie, a half dollar… Now here we are at the half way point. Since we have a ten(ish) year goal we can’t completely say we are halfway there but we can say that we are halfway gone. 5 weeks under our belt and lots and lots of steps to show for it. LOTS! No no no… Not these steps, or even these, . I’m talking about the kind we… Read More »Tiara's Tuesday Talk – We're Walkers!
Tiara’s Tuesday Talk – by Sara Sheibley Sometimes I should really pay attention to my own words. I type them, I read them yet I don’t heed them. This is how the story often goes, but this time I did myself in. For some reason even though I knew I was going to be busy, I knew it was a full day, I knew, I knew, I knew… And now… I wish but any way, I didn’t take my own advice. I was trying to do too much! Am I glad I cracked a new high for steps? Yep… 23,301 steps… Read More »Tiara's Tuesday Talk – We Live, We Learn, We Go On…
Team Spotlights – by Joyce Lameire Team Spotlight BELEIGHVE Meet Leigh Costello! Leigh started her walk team because “I want to help raise awareness for AS that goes beyond my family and friends.” Leigh’s story is one heard from many with AS “I was diagnosed in 1978 and being a girl, I got a pat on the back and a best of luck from the doctor who diagnosed me. I have done searches on the internet through the years and since no one mentioned AS again I figured the information on AS didn’t apply to my case. Doctors would… Read More »Team Spotlight – BeLEIGHve
Tiara’s Tuesday Talk – by Sara Sheibley Here we are at and a lot of us are hitting our stride, figuring out pedometers and just simply WALKING! Isn’t this exciting??? Okay so our feet may not be finding as exciting as we are but hey, a little foot rub and they’ll be thanking you for it! Last year for the first few weeks of the walk I concentrated on assistive devices to aide in walking and things to do to relieve aches and pains. I was in a place at that time where I really couldn’t walk well. Actually…… Read More »Tiara's Tuesday Talk – Hitting Our Stride