Tiara’s Tuesday Talk – by Sara Sheibley Why didn’t anyone tell us this crud? I’ve been sick for what? 5 years now? Okay, okay… 26 but who’s counting? (Me, that’s who.) At what point would it have been important to explain that the “heat” radiating off my body is inflammation? I think doctors forget we can’t read minds. However, since I can’t take nsaids, it’s a terrible situation and it’s one that more and more of us are going through. Drug intolerance, ulcers, allergies… these are just a few of the reasons why most of us have lost our 1st… Read More »Tiara's Tuesday Talk – Attacking The "Why Me's"
Today’s walk-ku by Michael Smith haiku #1: All of my efforts can be summed up by how I continue walking. haiku #2: As Spring emerges, crocuses and daffodils greet me while I stroll. Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been raising AS awareness online for almost 20 years. Five years ago, he started the April is Spondylitis Awareness Month campaign and last year co-produced the Best Medicine Night of Comedy fundraiser to benefit the Spondylitis… Read More »Sunday On A Walk With Michael – Week 6
Wednesday Walker Spotlight – Jenna by Chris Scott Hello Walkers!! Once again you folks have amazed us. The numbers that are coming in are OUTSTANDING!! We set a very lofty goal this year for Walk Your AS Off. and we are looking better each week.. Congratulations to each and every one of you!! Keep it up! This week I am spotlighting the gal who started all of this, Jennifer Dye Visscher. She is the burning force behind Walk Your AS Off. Last year she single-handedly brought together people from around the globe to join together and walk around the world in… Read More »Wednesday Walker Spotlight – Jennifer Dye Visscher of The Blue Apples
Tiara’s Tuesday Talk – by Sara Sheibley This week I’m going to discuss exercise in a different manner. For most patients with Ankylosing Spondylitis exercising increaseS our mobility, flexibility and decreases pain and depressions. Many studies show this to be true however, the question is, what if we over do it? What if you set a goal but fail to meet it? Usually the side effect of this is feelings of inadequacy and depression which then increases our pain. Also, you can put yourself into a cycle of exercise, required rest, depression and then a lack of interest to restart… Read More »Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.
Jennifer, the team captain of Going The Distance, contacted me yesterday to share with me some ideas she and her fellow team mates had about getting together to do some team walks. I loved her enthusiasm and excitement so I asked her to write a few paragraphs about her ideas and how they came about. Here is what Jennifer wrote: “Easter Sunday I gathered with my family who are also part of my “Walk Your A.S. Off” Team. While discussing the walk, a very innocent question was asked… “When can we do a GROUP Walk?” Seemed easy enough, but… Read More »Grab Your Friends & Walk For A.S. Awareness Month!
Wednesday Walker Spotlight – Gregg by Chris Scott & Tracy Lemieux Hello Walkers!! We’ve had another great week of walking and are well on our way to reaching the Moon!! This week’s Spotlight is a little different. This is Gregg’s Story as told by his mom, Tracy Lemieux. Tracy formed her team, “Team Gregg’s Legs” to support her son as he battles AS and its related problems, and to try to raise awareness in their area, Langley, BC, Canada. Tracy shares the following with us. “My 31 yr old son Gregg was diagnosed about 3 yrs ago, actually quite by accident.… Read More »Wednesday Walker Spotlight – Gregg of Team Gregg's Legs
Tiara’s Tuesday Talk – by Sara Sheibley Everyone compares. It’s the whole keeping up with the Joneses thing. “Hey look! The Joneses got a flower bed. I need a flower bed.” “The Joneses bought a new car. I need a new car.” Wow… Jenna (Yes I am picking this wonderful woman) had 16,521 steps yesterday. I only did 4587. I should do better. I’m letting everyone down. I… I… I… Notice what happens once the comparison materializes. We take something good about someone else and warp it into a downward spiral of self-deprecation, deeming ourselves unworthy or incapable, not good… Read More »Tiara's Tuesday Talk – EVERY Step Matters
Wednesday Walker Spotlight – Kelly Warner by Chris Scott Hello Walkers!! It’s time for another Wednesday Walker Spotlight. This week I would like you to meet Kelly Warner. Kelly was rocking this years walk by taking on the Million Step Challenge. But yesterday she had a little mishap on her bike. We are all hoping that she makes a speedy recovery and is soon back in step and not hurting. Kelly is 42 and lives in Washington state. She received her diagnosis of AS and related conditions at the age of 28. Kelly struggled with AS for many years before… Read More »Wednesday Walker Spotlight – Kelly
Tiara’s Tuesday Talk – by Sara Sheibley So here we are at Tuesday again and time for my weekly talk. After much deliberation, and a helping brain from my daughter Ashleigh, we are going to discuss exercises you can do to help stretch out that back which may get achy from walking. For people with Ankylosing Spondylitis a back ache can occur at any time without any known reason. This is called a flare. Flares are the sudden and severe onset of symptoms and for us this usually means a severe back ache, muscle spasms and issues with our SI joints.… Read More »Tiara's Tuesday Talk – Stretching
Hi! I’m Abbe and I live in a VERY small town in Southeastern Iowa. I grew up here and I pretty much love it. It’s one of those nice little places where you find out from your neighbors and friends what you’ve been up to. 😉 Typically around here, and in my family, it’s “stay under the radar” and “don’t rock the boat” so I was raised to be quite reserved. If I didn’t know you, I didn’t talk to you unless I absolutely had to. You could say I was almost painfully shy. I also was not into sports… Read More »Anything For A Good Cause – Well, Almost Anything!