I was planning on writing about how people with chronically painful illnesses are dimensional and should not only be viewed through the lens of their disease…and it would have been a mighty post and it would have inspired many, but in fact, that’s not my mindset right now. Right now I am in grieving. I am grieving the person I used to be…the person that once was. As soon as I was diagnosed with Ankylosing Spondylitis, a new realm of support opened for me with my healthcare providing system of insurance-izzle HMO. I belong to a large HMO that really… Read More »Coping with Grief and AS
Why walk? Walking can be really tough. There was a time when my AS felt horrible after walking, even high impact activity such as running felt better. When you have a spondylitis disease, any and all activity feels completely out of the question at times. There are days when I force myself to do exercise and I’m still a ball of pain. Flares can be very stubborn. If it feels so bad to move, why do it? Because it feels worse not to. Every time I’ve given myself a break from exercise, it’s made me feel worse and flares last… Read More »Why Walk?
One of my favorite things to do to relax is to have a massage. No matter how stressful or exciting my day is, I can always relax during a one-hour Swedish or hot stone massage and they really help lower my pain level. I try to get one monthly, but this does not always happen. Yesterday, before my massage, the therapist asked me if there were any particular areas I would like to work on. I couldn’t help but laugh…I mean, come on, with A.S. everything hurts, right? As usual, I told her I have chronic pain just about everywhere, but… Read More »Spread The Word: Educate Others About AS
Welcome to the first round-up of the WYASO main event. The round-up is our way of sharing what others in the WYASO community are sharing and talking about. If you would like your blog post / video / newspaper article to be featured on the next round-up, please can you send us the link via email or leave a comment below. 70 Facts About My Invisible Illness You Might Not Know Carrie from The Walking Spondies on the facts of her invisible illness. “Despite the fact that this blog and my activity on social media has brought me into the public… Read More »WYASO Round-Up – Week 1
With each year that has passed Walk Your AS Off has grown. Every year we add new teams and new walkers to our community. This year has been no exception. I’d like to introduce you to two of our newest walkers, husband and wife, John and Denise Peterson. Both are members of the team ‘Making Trax’, which is captained by Ricky White. How did you come to find out about the Walk Your AS Off? “I met Ricky while playing online chess at Chess.com in our group called The Friendly Knights. We had been playing back and forth for maybe… Read More »Walker Spotlight – Mr & Mrs Peterson
May 4, 2015 I birthed a Star Wars Geek. He is almost 9 years old and Stars Wars is his SPARK. He is a sponge when it comes to anything Star Wars, so that means that his mama (me) has by default come to know more about Star Wars that she ever though possible. A bit of background…Star Wars came out long before the 24-hour news cycle, before TV shows like Entertainment Tonight or entire cable channels devoted to “entertainment.” So when Star Wars premiered in the spring of 1977, it was advertised mostly by word of mouth. People of… Read More »May The Fourth Be With You…
The main event for Walk Your AS Off is almost upon us! Are you ready? I’m sure you are. Throughout the main event this year we will be running a weekly blog round-up of our walkers blog posts. The round-up is your opportunity to share your experiences with the whole of the WYASO community, and help to inspire and motivate each other. What is a round-up? A blog round-up is simply just a collection of blog posts about Walk Your AS Off. There will be a short description and link for each post, so you can read any post you want to in… Read More »Join Us For The WYASO Round-Up
Hi folks! I’m Carrie Kellenberger, and I’m Team Captain of The Walking Spondies in Taiwan. We’re an international team comprised of walkers from Canada, the US, the UK, Taiwan, and Australia. We held our first official Walk Your AS Off/WalkASOne event on Thursday, April 16th at CKS Memorial Hall in Taipei. This was also our first organized team walk, and we chose to host a night walk at the suggestion of one of our team runners, David Mitchell. Thank you for the fantastic idea, David, and thank you for getting there early to track the time and distance. Setting personal goals and… Read More »The Walking Spondies Night Walker April Event Recap
Hello WYASO Warriors! I’m thrilled to see what a great start we have for our 2016 spring season! The awareness that is happening in the AS community for AS Awareness month is stellar this year. There are blue toe nails everywhere thanks to Cookie Hopper and Helgi Olafson and the SAA Twitter & Instagram contest is in full swing. Sabrina is sharing her Daily Dose and those are just amazing this year. The talk of the walk is ramping up and new walkers are registering all the time! It’s not too late to form a team – stepping starts officially… Read More »Let's Set Some Goals!
I’m not sure if you noticed, but last week, no blog from me. I was in the hospital. Semi-not AS related, but come on, everything is AS-related in our bodies. I was MIA or as I like to say in-Kaiser-ated because my immune system allowed an insignificant insurgent bacteria to grow and duplicate and multiply and get way out of hand. Did it do this because it has been brainwashed to pay attention only to my spine or sacroiliac? Did my immune system miss a red flag when my armpit began to swell, redden and in the course of one… Read More »Where Does Strength Come From?