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Monday Motivation – Visions Of Our Destination

Musical Motivation Monday – by Heather Stewart   “You’re traveling through another dimension, a dimension not only of sight and sound but of mind. A journey into a wondrous land whose boundaries are that of imagination. That’s the signpost up ahead – your next stop, the Twilight Zone!” – Rod Serling   I spent most of the week pondering what to write about. What on Earth could I put on paper to keep our AS-tronauts motivated? What are our visions of our destination? As luck would have it a saw a book about “local boy” Rod Serling and I started thinking… Read More »Monday Motivation – Visions Of Our Destination

A Message From Jennifer Visscher On Our 2014 Walk

I’m not sure how to begin this but I’ve pondered it for too long so – here we go…   Dear Walk Participants, I want to apologize to everyone for not being as involved in the walk this year as you all deserve me to be. I could go into the reasons why – but I’ll spare you the details. Suffice it to say – AS has had its way with me lately and I’ve been struggling to do just about everything my life needs of me. So as it goes – everything has been affected and not accomplished to… Read More »A Message From Jennifer Visscher On Our 2014 Walk

Team Spotlight: A.S. – Standing Tall Together

Team Spotlight – A.S. Standing Tall Together by Joyce Lameire  Meet Michelle Fitch. Michelle decided to do a walk team with her  co captain Colleen Vasquez for their support group they run on Facebook to help raise awareness for AS. “This is our second year participating in the walk. This year we have over 60 walkers and our amazing Wee Walkers, which includes my grandson Dominik who is 2 and Colleen’s daycare kids, 8 years and younger.” “We hope to involve more family and friends and others who don’t have AS to help us spread awareness this year.” She had 4… Read More »Team Spotlight: A.S. – Standing Tall Together

Tiara's Tuesday Talk – The Rewards Of Not Giving Up!

I spent most of Sunday on my butt and whilst there I was hemming and hawing over what to write. I mean, I feel like I need to give 5 days of thought, 1 day  to chill about it and about an hour to actually type something (if that…). One thing that came to mind and I kind of played around with was this. ↑ errrr…. More like ↗. Never give up. I’m stubborn. I know those who know me well are hardly shocked by this revelation but for everyone else just play along like it’s shocking. Somewhere, somehow, someone… Read More »Tiara's Tuesday Talk – The Rewards Of Not Giving Up!

Monday Motivation – Our Very Special pAwS Partners

Musical Motivation Monday – by Heather Stewart It’s Monday again my dear AS-tronauts! This week only one thing continuously came to mind for me. Our pAwS partners! Some of you may not have realized or maybe you don’t remember that this year we are including the steps of our four-legged, tail wagging, barking friends. Why? Well, there are a couple of reasons. Many people with AS rely upon service dogs to help them. Service dogs provide assistance with a variety of medical conditions, not just for the visually and hearing impaired. Service dogs provide help with mobility, anxiety, PTSD, mental… Read More »Monday Motivation – Our Very Special pAwS Partners

Tiara's Tuesday Talk – We're Walkers!

Tiara’s Tuesday Talk – by Sara Sheibley     Lots of things are great as a half… That half a sandwich and a cup of soup deal, half of an oreo cookie, a half dollar… Now here we are at the half way point. Since we have a ten(ish) year goal we can’t completely say we are halfway there but we can say that we are halfway gone. 5 weeks under our belt and lots and lots of steps to show for it. LOTS! No no no… Not these steps, or even these, . I’m talking about the kind we… Read More »Tiara's Tuesday Talk – We're Walkers!

Monday Motivation – The Stars Shine For You

Musical Motivation Monday – by Heather Stewart Greetings AS-tronauts! Here we are striding past the half way mark of this leg of our journey to Mars. I don’t know about you but this is when my motivation starts to wane. Last week we talked about our frustration with being sick; that frustration evolves as you realize your step counts barely break 1000/day let alone 5000. It is this disappointment with your lower than expected step count that can lead to a lack of motivation. I was having trouble trying to figure out what to write this week. I was continuously berating… Read More »Monday Motivation – The Stars Shine For You

Tiara's Tuesday Talk – We Live, We Learn, We Go On…

Tiara’s Tuesday Talk – by Sara Sheibley Sometimes I should really pay attention to my own words. I type them, I read them yet I don’t heed them. This is how the story often goes, but this time I did myself in. For some reason even though I knew I was going to be busy, I knew it was a full day, I knew, I knew, I knew… And now… I wish but any way, I didn’t take my own advice. I was trying to do too much! Am I glad I cracked a new high for steps? Yep… 23,301 steps… Read More »Tiara's Tuesday Talk – We Live, We Learn, We Go On…

Monday Motivation – Where's The Kaboom?

Musical Motivation Monday – by Heather Stewart   Where’s the Kaboom? This past week I’ve been feeling like Marvin the Martian “Oh! Mutiny makes me so angry!” While there hasn’t been a mutiny on Spaceship WYASO2014 it seems there is some sabotage going on. I was sick the week before and this past week I have been trying to catch up and I don’t think I’ve done that yet. Through all of this I have noticed an increase in “flares” (when the inflammation increases creating lots of pain) for those of us with AS and other types of rheumatic problems and… Read More »Monday Motivation – Where's The Kaboom?

Team Spotlight – BeLEIGHve

Team Spotlights – by Joyce Lameire Team Spotlight   BELEIGHVE   Meet Leigh Costello! Leigh started her walk team because “I want to help raise awareness for AS that goes beyond my family and friends.” Leigh’s story is one heard from many with AS  “I was diagnosed in 1978 and being a girl, I got a pat on the back and a best of luck from the doctor who diagnosed me. I have done searches on the internet through the years and since no one mentioned AS again I figured the information on AS didn’t apply to my case. Doctors would… Read More »Team Spotlight – BeLEIGHve