Today’s walk-ku by Michael Smith My feet meet the road. The road is cordial … at first. Then things get bumpy. Michael Smith a.k.a. Spenser is the creator of Spondyville.com. Spondyville is a town where everyone has AS, so no-one ever has to feel alone in dealing with this disease. He has been […]
Tag Archives: Ankylosing Spondylitis
I first met Ivanhoe through AS Facebook friends a couple of years ago. His story & struggles with his fused joints are heart wrenching and inspiring at the same time. Ivanhoe has not only a fully fused back but fusing in one shoulder and both hips. His body has become a cage limiting movement in […]
We’ve asked the community of AS Bloggers to write & submit a blog post for our Blog Carnivals happening periodically over the span of our walk. This week we are sharing posts submitted about: Awareness, the good, the bad, and the ugly! Leading the way is Ricky of Endless Trax who wrote a very compelling […]
We are beyond excited to announce our partnership with the Arthritis National Research Foundation. ANRF is working with us on funding an Ankylosing Spondylitis specific research grant! This is a Mission Awareness equal to none and a concrete way to take action to raise money to support research for a cure. Once it is […]
Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto. He told his AS story and then listed what needed to be done for other people living with AS. He also announced that […]
Hey Everybody!! Meet Colleen Colleen is one of the captains on AS Standing Tall Together. She lives with her husband and 2 children in California, where she operates a daycare. As we gear up for Walk Your AS Off 2013 she is coming off the 3rd anniversary of her diagnosis of Seronegative AS. (HLA B27-) […]
Hi my name is Sara Tiara. Ok so tiara isn’t really my last name, it’s Shiebley but I have a love of Tiaras so Tuesdays are going to be Tiara’s Tuesday Talk and today I’m going to discuss walking aides. During this walk it is imperative that we don’t put our physical safety at risk. […]
Yesterday was a big day for Ankylosing Spondylitis Awareness. Huw Irranca-Davies, a member of the British Parliament spoke about A.S.! Please take a moment to listen to his eloquent description of his own story and the need for more research, better access to care, and the imperative to reduce the number of years it […]
Hello there! I’m Heather Stewart. I am from Central New York and one of the proud captains of Rockin’ Weebles: Weebles Kick A.S. I grew up around A.S. My maternal grandfather had it and I never knew him when he didn’t have it. I could never understand why he couldn’t turn his head. I watched […]
How do you stay motivated? It can be difficult because life gets busy. So we are here to keep you thinking about moving & adding steps to your day! To receive our once a day inspiration & motivation simply text “ASwalk” – no spaces – to the number 55678! You will receive your […]