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Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.

Tiara’s Tuesday Talk – by Sara Sheibley   This week I’m going to discuss exercise in a different manner. For most patients with Ankylosing Spondylitis exercising increaseS our mobility, flexibility and decreases pain and depressions. Many studies show this to be true however, the question is, what if we over do it? What if you set a goal but fail to meet it? Usually the side effect of this is feelings of inadequacy and depression which then increases our pain. Also, you can put yourself into a cycle of exercise, required rest, depression and then a lack of interest to restart… Read More »Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.

Grab Your Friends & Walk For A.S. Awareness Month!

Jennifer, the team captain of Going The Distance, contacted me yesterday to share with me some ideas she and her fellow team mates had about getting together to do some team walks. I loved her enthusiasm and excitement so I asked her to write a few paragraphs about her ideas and how they came about. Here is what Jennifer wrote:   “Easter Sunday I gathered with my family who are also part of my “Walk Your A.S. Off” Team.  While discussing the walk, a very innocent question was asked… “When can we do a GROUP Walk?” Seemed easy enough, but… Read More »Grab Your Friends & Walk For A.S. Awareness Month!

Anything For A Good Cause – Well, Almost Anything!

Hi! I’m Abbe and I live in a VERY small town in Southeastern Iowa. I grew up here and I pretty much love it. It’s one of those nice little places where you find out from your neighbors and friends what you’ve been up to. 😉 Typically around here, and in my family, it’s “stay under the radar” and “don’t rock the boat” so I was raised to be quite reserved. If I didn’t know you, I didn’t talk to you unless I absolutely had to. You could say I was almost painfully shy. I also was not into sports… Read More »Anything For A Good Cause – Well, Almost Anything!

Help Us Fund A Research Grant For AS With Arthritis National Research Foundation!

We are beyond excited to announce our partnership with the Arthritis National Research Foundation.    ANRF is working with us on funding an Ankylosing Spondylitis specific research grant! This is a Mission Awareness equal to none and a concrete way to take action to raise money to support research for a cure. Once it is funded, we’ll know that WE did it! Patients powering the future – one step and one dollar at a time. For more information please check out the Walk Your A.S. Off funding page and watch the dollar marker tick up as we work to get… Read More »Help Us Fund A Research Grant For AS With Arthritis National Research Foundation!

Mission Awareness – Write Your Elected Officials

Take Action – Write Your Elected Officials by Richard Howard This is so inspirational. Yesterday I read how Huw Irranca-Davies, a member of the British Parliament addressed Parliament with a spondylitis manifesto.  He told his AS story and then listed what needed to be done for other people living with AS.  He also announced that he is joining the worldwide event to “Walk Your AS Off”. It’s brilliant. I would love my congressman and senator to speak up about spondylitis and join us in walking. I just wrote my congressman to follow Huw Irranca-DAvies example and to join us walking… Read More »Mission Awareness – Write Your Elected Officials

Helgi Olafson's Fitness Fridays & Twitter Chats

Hello and welcome to Fitness Fridays!!. My name is Helgi Spencer Olafson and I am an amateur endurance athlete, health activist for A.S., highly skilled executive chef, and a “Jack of all trades.” I love mother nature and everything she has to offer. I am excited to be able to train to become a professional triathlete on the beautiful Big Island of Hawaii. Most of all, I am excited to be able to share my experience with this paradise with everyone in this Challenge. I ask only one thing from my audience: If you become inspired to make positive healthy changes to… Read More »Helgi Olafson's Fitness Fridays & Twitter Chats

AS Bloggers Carnivals During Walk Your A.S. Off!

A Blog Carnival is a blog article that contains links to other articles covering a specific topic. We wish to share the many amazing ASer blogs here during Walk Your A.S. Off & we’ll have 4 carnivals & topics to share your blogs & sites with our worldwide audience. Feel free to submit a new blog post or a post you’ve done on this subject before. Our primary walk goal is to raise awareness and your words & efforts are so important to doing this because you share what a life with AS is like. Also – we have three dates we are… Read More »AS Bloggers Carnivals During Walk Your A.S. Off!

Let's WALK the WALK

Let’s not just talk the talk about needing there to be more awareness of Ankylosing Spondylitis. In order to take great strides to make a difference we need people to walk the walk! This walk is not about individual contributions (personal goals are awesome) but we make an impact together. We have a HUGE goal this year so here are a few Facebook Covers to get a few more people on board! Facebook Timeline in Red (click on image to get full size then right click on it to save it to your computer & upload)     Facebook Timeline… Read More »Let's WALK the WALK

Mission AWARENESS: Walk Ambassadors!

One of the three main goals of our walk is to broaden general awareness of Ankylosing Spondylitis & the related family of diseases. And, as you all know, sometimes this feels like a Mission Impossible. We’re going to turn that thinking on its head and make it Mission AWARENESS! With your help we will be posting “Take Action” & “Mission Awareness” posts & images and concrete actions that you can take to help us with our collective goal. With this in mind we are looking for people who want to take a special part in helping us raise the roof!… Read More »Mission AWARENESS: Walk Ambassadors!

Create, Inspire, Share & Raise Awareness!

Well – we would love to see your creativity! We have already had some fantastic awareness posters for the walk being made and we’d love to see some more! We’ll share them here & post them on all of our social media channels and in turn our walk will spread and grow – with your help! We will be sharing some ways that you can TAKE ACTION to help us raise awareness. This is our first post about a concrete action you can take to help us with our collective goal of raising awareness of this family of diseases. Graphics… Read More »Create, Inspire, Share & Raise Awareness!