Image Source (Creative Commons) Guest post: Anita Dasson I’ve had chronic pain on and off since childhood, and have now been diagnosed with Ankylosing Spondylitis and a few other health conditions. I had an MRI for my spine yesterday. I’ve received the films and I am waiting for the report and specialist consultation. Although some areas on the films look suspicious, I can’t help taking the films out and trying to make sense of them over and over again. Waiting is the hardest bit. There are lots of conflicting thoughts and anxieties bounce around inside my head and heart. What’s… Read More »Walk With Me A While
My name is Lynne McDonald and I have Ankylosing Spondylitis. I have had symptoms since I was 19, diagnosed officially when I was 49, and am now 63. It has been a long, trying battle of “me” against my body but I have fought on. I have tried numerous rheumatologists with all the same answer; drugs, see which ones work. None did. They made me feel worse. When they brought up the subject of Enbrel, I headed for the door in full fleeting mode due to reported side effects of certain blood cancers, which have a high occurrence in my family. I was even told by one rheumatologist not to come back… Read More »Why Walking Makes Me Feel Better – Keep Moving!
AS is a thief, a trickster and a really crappie life-partner. AS has no moral compass and absolutely no compassion. Its lack of empathy is only matched with its intense perseverance. It takes hold and never lets go…even if you have episodes of remission, this disease is lying in wait. Although it is true that chronic illnesses do not affect all patients in the same way, Ankylosing Spondylitis is known to cause inflammation, pain and fatigue. AS disrupts our daily activities, our plans and our ability to maintain relationships and often work. Chronic illness can bring depression, anxiety and a… Read More »You Are Reading This Because You Have Ankylosing Spondylitis
Guest Author: Shalva (Brenda) Berger There once was a life. Within this life there was a strong, loving woman full of faith. She had encountered many obstacles in life. Yet, regardless of the obstacles, she persevered through them and instead chose to embrace the small joys that were presented by each day. This woman adored children. She became a teacher and taught them not only academics, but also values. Revealing that every student and child within her classroom mattered, regardless of their race, background, struggles, or special needs. This woman loved her own children as the precious gifts they were,… Read More »The Beast Within – Ankylosing Spondylitis
Guest Author: Micki Hogan There is a disease out there crippling people. This disease is vicious. It can cause unfathomable pain. This is a disease few have heard about. We are talking about Ankylosing Spondylitis. Ankylosing Spondylitis is a autoimmune/anti-inflammatory disease that primarily affects the spine, but AS is a very powerful disease that can take control of someone’s life if they do not receive a proper diagnosis. Living undiagnosed is something many people do every day. They suffer and wonder why? Why am I in so much pain? Some have been lost not knowing the disease could even be a… Read More »Do You Have Persistent Back Pain? Here Is What You Need To Know
It’s that time of year, the Holidays. We always end up trying to figure out how to not end up in a flare. So, I asked some of my chronically-ill friends what they do or what best practices they would share with others. Avoid people It seems a little anti-social doesn’t it for such a social time but it is great advice. Try to avoid large crowds. I know we’re already after one of the major shopping days here in the US but you can still get caught up in the crowds. One way to avoid the crowds is to… Read More »Five Tips for Staying Flare Free Over the Holidays
I’d never given Mount Fuji a thought before I came to Japan. Even when I arrived here nearly a year ago it seemed a vague and unattainable thing; something merely depicted in art, pictures, and advertisements. Most of the people I asked about it had only seen the mountain from afar. Yet somehow the hair-brained idea of climbing Fuji slowly but surely crept into my mind. I was diagnosed with Ankylosing Spondylitis(AS) my senior year of high school. With lots of patience, and lots of Enbrel, I was able to get it under control, and had the privilege of studying… Read More »How I Walked My AS Off — Charlotte's Story of Climbing Mt. Fuji
Our team, Torus Ankylosaurus, celebrated crossing the finish line on May 31st, 2016! This is our second annual WYASO celebration and it won’t be our last. We stuck with a blue and orange theme again for our celebration. (It’s hard to change it up, lol!) We had blue cheese burgers and blue claw crab, candied carrots, orange mango salsa with blue chips and, of course, orange and blue mixed drinks! We had a great time playing board games and dancing! We ended the day with cake, a movie, and some gifts that I was not expecting! I have always been a science… Read More »Team Spotlight 2016: Torus Ankylosaurus
Thank you for coming back. Your emails have been very nice to read, and I truly feel your pain. The main objective of my story is to help others understand, and for you to hear from someone who has been very recently diagnosed with A.S. This article is aimed at the guys/girls who are brave enough to get online and check out some websites because they have A.S… This is for you. The article may seem like the worst case scenario, but it is, as I have a severe case of A.S. So let’s talk about A.S. and if you… Read More »My Story – by Bret (part 2)
Photo by Hamed Saber TODAY IS THE DAY! IT’S TIME TO START STEPPIN’! It’s that time of year again…it is WALK YOUR AS OFF! W is for Waiting. It’s so hard to wait for the event to begin on April 1, 2016. A is for Awareness. That’s why we count our steps and promote this annual event—to create awareness. L is for Line-Up. Your line-up, your team, your motley crew—the people that are on your side. K is for Kicking AS, because that what we do—WE KICK AS. Y is for Yes. Yes, you can take one more step (and then… Read More »It's Time To Walk!