Activism

Recognizing Caregiver Burnout: We Thank You and Salute You!

Many times we address the needs of those of us with Ankylosing Spondylitis and we fail to acknowledge the people in our lives that act as caregivers and support systems. We all have at least one person – a partner, a parent, or a friend that we turn to when we are in a flare or just in need of assistance. When I looked around myself and other members of the Walk AS One Board and I noticed that many of my fellow board members have partners they can rely on. I have my mother and other family and friends,… Read More »Recognizing Caregiver Burnout: We Thank You and Salute You!

Walk Your AS Off World Arthritis Day 2016 – RECAP

The Walk AS One community stood tall this year to raise awareness for Ankylosing Spondylitis on World Arthritis Day 2016. Our teams walked 1,287,797 steps in ONE DAY to raise awareness for Ankylosing Spondylitis on World Arthritis Day, which was on October 12, 2016. Our Not-So-Silent auction raised the money we need to redo our Walk Your AS Off site with an integrated step count system with FitBit, so we’re going to be starting on that shortly. Our site will be much easier to manage for Walk Your AS Off 2017, so get ready for our best year yet! It’s… Read More »Walk Your AS Off World Arthritis Day 2016 – RECAP

Team Spotlight 2016: Torus Ankylosaurus

Our team, Torus Ankylosaurus, celebrated crossing the finish line on May 31st, 2016! This is our second annual WYASO celebration and it won’t be our last. We stuck with a blue and orange theme again for our celebration. (It’s hard to change it up, lol!) We had blue cheese burgers and blue claw crab, candied carrots, orange mango salsa with blue chips and, of course, orange and blue mixed drinks! We had a great time playing board games and dancing! We ended the day with cake, a movie, and some gifts that I was not expecting! I have always been a science… Read More »Team Spotlight 2016: Torus Ankylosaurus

World AS Day in Taiwan with The Walking Spondies

Hi Everyone! My name is Carrie Kellenberger and I’m Team Captain of The Walking Spondies. I thought I’d take the time to update you all on what our team got up to on World AS Day, which is always held on the first Saturday of May each year. This year, World AS Day fell on Saturday, May 7th, and we decided to host our second Walk Your AS Off team event at Da’An Forest Park in Taipei. This was our second team walking event for 2016, and we decided to host a potluck picnic in the park for the afternoon… Read More »World AS Day in Taiwan with The Walking Spondies

An Honest Appeal

Greetings My People, Take a breath, a moment and please read this. I know this time of year I’m a broken record. “Join Rockin’ Weebles: Weebles Kick A.S.!” All I am trying to do is shed some light on the disease that I and so many others have. It isn’t going away. It’s scary for us. It gets worse every day. Every day we learn of other diseases/complications we have to be aware of as our body attacks itself. Every now and then we go through the grieving process for aspects of our life that we once enjoyed vanishing beyond… Read More »An Honest Appeal

Spread The Word: Educate Others About AS

One of my favorite things to do to relax is to have a massage. No matter how stressful or exciting my day is, I can always relax during a one-hour Swedish or hot stone massage and they really help lower my pain level. I try to get one monthly, but this does not always happen. Yesterday, before my massage, the therapist asked me if there were any particular areas I would like to work on. I couldn’t help but laugh…I mean, come on, with A.S. everything hurts, right? As usual, I told her I have chronic pain just about everywhere, but… Read More »Spread The Word: Educate Others About AS

The Impact of Ankylosing Spondylitis Awareness Month

April is Ankylosing Spondylitis Awareness Month. By raising awareness, more research can be focused on AS progression, treatment, and potential cures. One of the reasons why Walk Your AS Off is so important is the awareness it raises for Ankylosing Spondylitis. By raising awareness, there is a potential for more research to be focused on AS progression, treatment, and potential cures. One of the things I struggle with the most is that we are in the year 2015 and yet there are few effective treatments for AS and other diseases like it. Those that are effective come with a laundry… Read More »The Impact of Ankylosing Spondylitis Awareness Month

Why I Walk; Why You Walk

Why I Walk for Walk Your A.S. Off Why do I walk? I walk because I have to. I walk because walking is a fundamental action that on certain days seems impossible to me. I walk because spending a few weeks counting my steps, managing a team and encouraging others is what I do. Why do you walk? Well, if you don’t have A.S. you are walking in support of someone, most likely someone you know and maybe even love. If you are on my team, you are walking for me. You might be walking to pay me back for… Read More »Why I Walk; Why You Walk

I'm Mad As Hell!

I’m mad as hell and I’m not going to take it anymore! Frankly, this isn’t something that I get ‘mad as hell’ about. Perhaps I should. Decisions are being made about which medicine you have access to. It’s not based on science. It’s not based on evidence. It’s not your doctor’s decision. You do have a choice. Your choice is ‘take it or leave it.’ If you can afford to pay nearly $20,000USD a year for medicine, then you have more choices. ‘Advocacy’ and ‘public policy’ doesn’t usually stir much anger or emotion from me. Perhaps they should. In states… Read More »I'm Mad As Hell!

2014 Walk Your A.S. Off – Step Announcement

What an amazing year we’ve had! We are well on our way to Mars now walkers and it is all thanks to you – every person who took even one step towards our goal. Thank you. Thank you to all of our team captains  – Joyce Lameire, Michael Mallinson, Bruce Williams, Michelle Fitch, Colleen Vasquez, Ashley Laughlin, Gillian Anderson, Marlin and Jacquie Gregor, Leigh Costello, Aoife Brady,  Ria Bower, Michele Seher, Tess Johnson, Adrienne Taren, Gregg & Sarah Lemieux, Jessica Upchurch, Karen Hall, Melanie Long, Robin Kindrick, Susan Swarts, Prashanth BP, Melissa Levanduski, Caitlin O’Leary, Tony King, Robyn Dishong, Abbe Kaufman,… Read More »2014 Walk Your A.S. Off – Step Announcement