Many times we address the needs of those of us with Ankylosing Spondylitis and we fail to acknowledge the people in our lives that act as caregivers and support systems. We all have at least one person – a partner, a parent, or a friend that we turn to when we are in a flare […]
Tag Archives: Activism
The Walk AS One community stood tall this year to raise awareness for Ankylosing Spondylitis on World Arthritis Day 2016. Our teams walked 1,287,797 steps in ONE DAY to raise awareness for Ankylosing Spondylitis on World Arthritis Day, which was on October 12, 2016. Our Not-So-Silent auction raised the money we need to redo our […]
Our team, Torus Ankylosaurus, celebrated crossing the finish line on May 31st, 2016! This is our second annual WYASO celebration and it won’t be our last. We stuck with a blue and orange theme again for our celebration. (It’s hard to change it up, lol!) We had blue cheese burgers and blue claw crab, candied carrots, orange […]
Hi Everyone! My name is Carrie Kellenberger and I’m Team Captain of The Walking Spondies. I thought I’d take the time to update you all on what our team got up to on World AS Day, which is always held on the first Saturday of May each year. This year, World AS Day fell on […]
Greetings My People, Take a breath, a moment and please read this. I know this time of year I’m a broken record. “Join Rockin’ Weebles: Weebles Kick A.S.!” All I am trying to do is shed some light on the disease that I and so many others have. It isn’t going away. It’s scary for […]
One of my favorite things to do to relax is to have a massage. No matter how stressful or exciting my day is, I can always relax during a one-hour Swedish or hot stone massage and they really help lower my pain level. I try to get one monthly, but this does not always happen. […]
April is Ankylosing Spondylitis Awareness Month. By raising awareness, more research can be focused on AS progression, treatment, and potential cures. One of the reasons why Walk Your AS Off is so important is the awareness it raises for Ankylosing Spondylitis. By raising awareness, there is a potential for more research to be focused on […]
Why I Walk for Walk Your A.S. Off Why do I walk? I walk because I have to. I walk because walking is a fundamental action that on certain days seems impossible to me. I walk because spending a few weeks counting my steps, managing a team and encouraging others is what I do. Why […]
I’m mad as hell and I’m not going to take it anymore! Frankly, this isn’t something that I get ‘mad as hell’ about. Perhaps I should. Decisions are being made about which medicine you have access to. It’s not based on science. It’s not based on evidence. It’s not your doctor’s decision. You do have […]
What an amazing year we’ve had! We are well on our way to Mars now walkers and it is all thanks to you – every person who took even one step towards our goal. Thank you. Thank you to all of our team captains – Joyce Lameire, Michael Mallinson, Bruce Williams, Michelle Fitch, Colleen Vasquez, Ashley […]