Greetings My People, Take a breath, a moment and please read this. I know this time of year I’m a broken record. “Join Rockin’ Weebles: Weebles Kick A.S.!” All I am trying to do is shed some light on the disease that I and so many others have. It isn’t going away. It’s scary for us. It gets worse every day. Every day we learn of other diseases/complications we have to be aware of as our body attacks itself. Every now and then we go through the grieving process for aspects of our life that we once enjoyed vanishing beyond… Read More »An Honest Appeal
Hello everyone – Jenna here! I am writing this week’s Monday Motivation (ok… on Tuesday) for Heather because she isn’t feeling so great unfortunately. Please send her some good vibes – & a comment below would be lovely. When I heard from her yesterday I told her I would write something so not to worry. I immediately knew what I wanted to write about – the motivation we get from our teammates and fellow travelers on this AS Walk. I feel inspired by their courage, their grit, and their dedication and those qualities motivate me beyond measure! Here are some… Read More »Monday Motivation – Our Teammates
Here we are AS-tronauts – stepping off for week nine on the first leg of our journey to Mars. What a ride it has been! All of us have contributed over 340 million steps so far we are zooming right along. As I was contemplating our motivation this week my strongest supporter, my mother, said something I found really interesting, “sometimes motivation comes from habit”. The more I thought about it I agreed with her. Think about it…each day we strap on our pedometers and walk around with it all day. We do it for ten weeks and along the… Read More »Motivation Monday – Keeping The Habit
Musical Motivation Monday – by Heather Stewart “You’re traveling through another dimension, a dimension not only of sight and sound but of mind. A journey into a wondrous land whose boundaries are that of imagination. That’s the signpost up ahead – your next stop, the Twilight Zone!” – Rod Serling I spent most of the week pondering what to write about. What on Earth could I put on paper to keep our AS-tronauts motivated? What are our visions of our destination? As luck would have it a saw a book about “local boy” Rod Serling and I started thinking… Read More »Monday Motivation – Visions Of Our Destination
Musical Motivation Monday – by Heather Stewart It’s Monday again my dear AS-tronauts! This week only one thing continuously came to mind for me. Our pAwS partners! Some of you may not have realized or maybe you don’t remember that this year we are including the steps of our four-legged, tail wagging, barking friends. Why? Well, there are a couple of reasons. Many people with AS rely upon service dogs to help them. Service dogs provide assistance with a variety of medical conditions, not just for the visually and hearing impaired. Service dogs provide help with mobility, anxiety, PTSD, mental… Read More »Monday Motivation – Our Very Special pAwS Partners
Musical Motivation Monday – by Heather Stewart Greetings AS-tronauts! Here we are striding past the half way mark of this leg of our journey to Mars. I don’t know about you but this is when my motivation starts to wane. Last week we talked about our frustration with being sick; that frustration evolves as you realize your step counts barely break 1000/day let alone 5000. It is this disappointment with your lower than expected step count that can lead to a lack of motivation. I was having trouble trying to figure out what to write this week. I was continuously berating… Read More »Monday Motivation – The Stars Shine For You
Musical Motivation Monday – by Heather Stewart Where’s the Kaboom? This past week I’ve been feeling like Marvin the Martian “Oh! Mutiny makes me so angry!” While there hasn’t been a mutiny on Spaceship WYASO2014 it seems there is some sabotage going on. I was sick the week before and this past week I have been trying to catch up and I don’t think I’ve done that yet. Through all of this I have noticed an increase in “flares” (when the inflammation increases creating lots of pain) for those of us with AS and other types of rheumatic problems and… Read More »Monday Motivation – Where's The Kaboom?
Musical Motivation Monday – by Heather Stewart WYASO2014 to Houston, come in Houston. HOUSTON we have satellites! All of our lives we are surrounded by people; family, friends, co-workers, associates. We even have phrases like “circle of friends” to describe some of them. We place ourselves in the center and they surround us. Over the years some relationships burn fast and hot, others a slow burn while even others are strong and constant. They say that everyone comes into your life for a reason, the strong constant people, they are our satellites. You know who they are, they are with you… Read More »Monday Motivation – We Have Satellites!
by Heather Stewart “MISSION TO MARS is ready to Blast Off”, is what Marc Goodwin of the Rockin’ Weebles: Weebles Kick AS told his long time friend. You see, Marc is a trail runner and his friend has AS so when Marc saw posts about the Rockin’ Weebles and Walk Your AS Off he decided to talk to his running friends about AS and see if they would contribute their steps to our Mars journey. Then he took it one step further… I am pleased to announce that this year participants in the Down To Run Endurance Challenge have the… Read More »MISSION TO MARS is ready to Blast Off
Musical Motivation Monday – by Heather Stewart Greetings Earthlings! It’s Monday and we are just breaking orbit on our journey to Mars! That’s right, MARS! Last year we made it from the Earth to the Moon, this year we are beginning a longer walk. We don’t expect to make it to Mars in the next few weeks but we will get there eventually. So, everyone wants to know why Mars? The journey to Mars represents the average time it takes for someone with Spondylitis to be diagnosed and sadly that average is 10 years. This is one of the reasons why… Read More »Musical Motivation Monday – Hop Aboard The Starship WYASO2014!