Can you believe it? We’ve been walking together for 55 days! I know we can start to get weary at this point – but I also know that since we are ASers (both literally & in spirit) and because of our life experience of living with challenges day in and day out – that we can make it to the end! We will start posting our Super Steppers! Super steppers are folks who have showed heart, gut, and perseverance during this event. Get those steps in, recruit a friend or two in these last 10 days, spread some AS Awareness and be a… Read More »Let's Finish STRONG – Only TEN Days to go!
Tiara’s Tuesday Talk – by Sara Sheibley Doctor’s bills? Yes we got ‘em. (To the tune of $695 and that’s only the bills I have.) Copays? They kill us. (I can’t even see some doctors because I don’t have the money for it.) Prescriptions? Cost us a small fortune. (Thank my lucky stars for insurance, I feel for those who don’t have it.) We jump through hoops for approvals for medicines, finding the ones that work best, affording appointments, affording physical therapy… The list goes on and on. What can we do? Not much because we need these things to… Read More »Tiara's Tuesday Talk – There Is More Going On Here
Musical Motivation Monday – by Heather Stewart The last few weeks have been a bit sluggish as far as our steps. I don’t know how many times I have heard “sorry, not many steps this week…” I am told that weeks six and seven are the hardest to stay motivated. I admit that even I had a hard time. Who wants to go out and rock those steps and try to do more than what can be done inside? It is spring and the weather is supposed to be breaking but snow flurries still fall and frost still coats the… Read More »Musical Motivation Monday – Here Comes The Sun!
by Sabrina Diane Throughout this walk I’ve pushed myself out of my comfort zone to spread awareness and gather steps on a whole new level. AKA Harassing friends and family and now even strangers to join in and help us. The funny thing is with as awkward as I felt about asking these people they didn’t feel uncomfortable about it at all. They were open to listening and helping. Many of my friends and family were thrilled to have a way they could show support for me and my struggles with Ankylosing Spondylitis. Strangers felt inspired by our efforts and… Read More »Finding Steps In All Kinds Of Places!
Tiara’s Tuesday Talk – by Sara Sheibley Why didn’t anyone tell us this crud? I’ve been sick for what? 5 years now? Okay, okay… 26 but who’s counting? (Me, that’s who.) At what point would it have been important to explain that the “heat” radiating off my body is inflammation? I think doctors forget we can’t read minds. However, since I can’t take nsaids, it’s a terrible situation and it’s one that more and more of us are going through. Drug intolerance, ulcers, allergies… these are just a few of the reasons why most of us have lost our 1st… Read More »Tiara's Tuesday Talk – Attacking The "Why Me's"
Musical Motivation Monday – by Heather Stewart Here we are again. I am sorry I wasn’t here last week. I have been in pain that has left me thinking about trying to stay motivated through the pain and how to keep mobile. I had intended to write about just that last week, staying motivated through the pain, but even I am having difficulty with that. I even asked some friends how they do it and the answers they gave me, at the time, didn’t seem to help. This week I went to physical therapy and we started talking about… Read More »Musical Motivation Monday – April 8th
Tiara’s Tuesday Talk – by Sara Sheibley This week I’m going to discuss exercise in a different manner. For most patients with Ankylosing Spondylitis exercising increaseS our mobility, flexibility and decreases pain and depressions. Many studies show this to be true however, the question is, what if we over do it? What if you set a goal but fail to meet it? Usually the side effect of this is feelings of inadequacy and depression which then increases our pain. Also, you can put yourself into a cycle of exercise, required rest, depression and then a lack of interest to restart… Read More »Tiara's Tuesday Talk – Our Daily Struggles With Exercise & Having A.S.
Jennifer, the team captain of Going The Distance, contacted me yesterday to share with me some ideas she and her fellow team mates had about getting together to do some team walks. I loved her enthusiasm and excitement so I asked her to write a few paragraphs about her ideas and how they came about. Here is what Jennifer wrote: “Easter Sunday I gathered with my family who are also part of my “Walk Your A.S. Off” Team. While discussing the walk, a very innocent question was asked… “When can we do a GROUP Walk?” Seemed easy enough, but… Read More »Grab Your Friends & Walk For A.S. Awareness Month!
Tiara’s Tuesday Talk – by Sara Sheibley Everyone compares. It’s the whole keeping up with the Joneses thing. “Hey look! The Joneses got a flower bed. I need a flower bed.” “The Joneses bought a new car. I need a new car.” Wow… Jenna (Yes I am picking this wonderful woman) had 16,521 steps yesterday. I only did 4587. I should do better. I’m letting everyone down. I… I… I… Notice what happens once the comparison materializes. We take something good about someone else and warp it into a downward spiral of self-deprecation, deeming ourselves unworthy or incapable, not good… Read More »Tiara's Tuesday Talk – EVERY Step Matters
Yeah! It’s Monday and time for some more meditations on motivation. Every day on our road there is a group of ladies that walk past our house to the corner and back, being a country road that is really a distance, but they do it. That got me thinking about our walk and how we stay focused on moving when we’re alone. We have our team mates but even then they may not be in the same area. The Rockin’ Weebles, we’re world –wide and not everyone has someone in the same town let alone the same country. Jenna, our… Read More »Musical Motivation Monday – Week Four