Spreading awareness for a disease helps in all sorts of ways. Ask the ‘ice bucket’ people. For Spondylitis, awareness improves lives. Everyone ‘walking their AS off’ already understands this and has their own story to share. April is Spondylitis Awareness Month Saturday, May 2, 2015 is World AS Day Please join the Spondylitis awareness campaign this month and have a chance to win an ipad mini! In my position at SAA and as a support group leader, I’m exposed to a lot of reasons. What happens when people are unaware? People ‘self medicate’ with alcohol and drug abuse. People break their neck with… Read More »Spondylitis Awareness Matters – Instagram/Twitter Campaign
April is Ankylosing Spondylitis Awareness Month. By raising awareness, more research can be focused on AS progression, treatment, and potential cures. One of the reasons why Walk Your AS Off is so important is the awareness it raises for Ankylosing Spondylitis. By raising awareness, there is a potential for more research to be focused on AS progression, treatment, and potential cures. One of the things I struggle with the most is that we are in the year 2015 and yet there are few effective treatments for AS and other diseases like it. Those that are effective come with a laundry… Read More »The Impact of Ankylosing Spondylitis Awareness Month
Today’s video from WYASO vlogger Ricky White shows you how to use your user page to record your steps for Walk Your A.S. Off. Subscribe to the AS Walk YouTube Channel today for additional tips and advice!
Find out how to register for the “Walk Your A.S. Off” awareness campaign. Subscribe to the AS Walk YouTube Channel today for additional tips and advice from Ricky White, our WYASO vlogger!
The WYASO website has changed a lot this year. As many of you know, we have added new features to make logging your steps much easier. There have also been many other updates, so what better way to tell you all about them than with videos!! This is the first of many videos I’ll be doing for the new WYASO YouTube channel. Please do check them out for additional tips and advice. You can Subscribe to the AS Walk YouTube Channel today so you never miss a WYASO vlog. Enjoy!
In 1966, two years before giving birth, James and Bobby Purify (and R&B Duo) released the song I’m Your Puppet. The opening lyrics go like this, Pull the string and I’ll wink at you. I’m your puppet. I’ll do funny things if you want me to, I’m your puppet. Enduring a radical autoimmune disease and attempting to live some sort of normal life, I often feel like a puppet. Here, pull this string and I’ll make the bed. Now tug the string and I’ll get to the grocers. Yank that one right there and I will do whatever you want,… Read More »I’m Your Puppet
Why I Walk for Walk Your A.S. Off Why do I walk? I walk because I have to. I walk because walking is a fundamental action that on certain days seems impossible to me. I walk because spending a few weeks counting my steps, managing a team and encouraging others is what I do. Why do you walk? Well, if you don’t have A.S. you are walking in support of someone, most likely someone you know and maybe even love. If you are on my team, you are walking for me. You might be walking to pay me back for… Read More »Why I Walk; Why You Walk
I’m mad as hell and I’m not going to take it anymore! Frankly, this isn’t something that I get ‘mad as hell’ about. Perhaps I should. Decisions are being made about which medicine you have access to. It’s not based on science. It’s not based on evidence. It’s not your doctor’s decision. You do have a choice. Your choice is ‘take it or leave it.’ If you can afford to pay nearly $20,000USD a year for medicine, then you have more choices. ‘Advocacy’ and ‘public policy’ doesn’t usually stir much anger or emotion from me. Perhaps they should. In states… Read More »I'm Mad As Hell!
As many of you know, dealing with A.S. can be quite a battle. A few nights ago, I was walking in my bedroom when I slipped and fell to the ground. Thankfully, I landed on the carpet, but it still was not a good feeling especially because I was in the midst of a bad flare. As I lay on the ground, frustrated, in tears, feeling defeated, and unable to pick myself up, I realized something. Throughout a lifetime of dealing with A.S., there are many times where we can feel beat up and knocked down. However, if we allow… Read More »When I get knocked down…
Teams are beginning to register for our 2015 spring event and the weather seems to be getting better for many. As we prepare for our fourth year we are looking for bloggers to post about our walk, awareness activities, team highlights, general information about Spondylitis, and possible gear reviews. If you are interested please email [email protected] Please join us in welcoming Nicole Maher – she will be blogging on Wednesday’s. Here is her first post: Are you ready to Walk Your A.S. off in a few weeks? My name is Nicole Maher and I live in Southwest Florida. After years… Read More »Welcome New Walk Blogger Nicole Maher