It was a dark and stormy night…. That’s how a good story starts right? No? Awe nuts. I’ve been thinking things over for a few days, well actually a week or so… Here we are at week 10. THIS is it. Reaching the moon… I wanted to make this a special post, to really put an EXCLAMATION on this journey we have been on together. As we approach the moon, there are a few things we need to clear up about it. First, it is not made of cheese. Trust me on this one. I would have been the… Read More »Tiara's Tuesday Talk – Where We Go From Here
Sabrina’s Daily Dose: Hiking and Pilates/Yoga —When I walk I stick to natural trails. They are easier on my feet and back. I invested in solid waterproof (Reynaud’s) hiking shoes that have foam lining to add comfort. I only carry my phone in one pocket and mace in the other. I keep it light and make sure my clothing flows easily. Then I’m off! I don’t carry water because it hurts my back, shoulders and arms after just a short while. I don’t stay out on the trail too long so I don’t need water. I’ll increase my… Read More »Sabrina’s Daily Dose: Hiking and Pilates/Yoga
Sabrina’s Daily Dose: Exercise I hear many Spondylitis patients say all the things they can’t do regarding exercise. Now I’m not going to dispute that there are days exercise is physically not possible but I will dispute that we can’t do it at all. I know fully fused Spondys that Move Their AS still. They may not be doing jumping jacks or running a marathon but they are stretching their stiff bodies and doing whatever they can to keep mobility as long as they can. I am not able to do exercise like others or as long as others but… Read More »Sabrina's Daily Dose – Exercise
Wednesday Walker Spotlight – Kinsella by Chris Scott Hello Walkers!! We are down to the wire, and are just about ready to touch down on the moon!! We need everybody to really kick in those steps so that we can make it to our goal. This week’s Spotlight Walker comes to us from The Rockin’ Weebles. I’d like for everybody to meet Kinsella. Kinsella is married and lives in Japan, where she is and English teacher at a Junior College. Here is her story… “Hello, my name is Kinsella. On my daily walks I usually take it slow so I… Read More »Wednesday Walker Spotlight – Kinsella
Tiara’s Tuesday Talk – by Sara Sheibley in·vis·i·ble /inˈvizəbəl/ Adjective: Unable to be seen; not visible to the eye. (Pretty easy to understand right?) Here is a picture of me being invisible. Pretty huh? In all seriousness, we hear over and over again about invisible illness. We have them. We deal with the fall out of these invisible illnesses. There are articles out there everywhere discussing not only the illnesses themselves but the ramifications of having them. Ricky White did an excellent one on his blog http://endlesstrax.com/2013/03/22/invisible-illness/. From our families to our friends to co-workers, strangers in the grocery store,… Read More »Tiara's Tuesday Talk – Tell Everyone!
Can you believe it? We’ve been walking together for 55 days! I know we can start to get weary at this point – but I also know that since we are ASers (both literally & in spirit) and because of our life experience of living with challenges day in and day out – that we can make it to the end! We will start posting our Super Steppers! Super steppers are folks who have showed heart, gut, and perseverance during this event. Get those steps in, recruit a friend or two in these last 10 days, spread some AS Awareness and be a… Read More »Let's Finish STRONG – Only TEN Days to go!
Wednesday Walker Spotlight – Sara by Chris Scott & Sara Sheibley Hello Walkers!! Week 7 is in the bag and what a week it was! I want to welcome all of the new folks that have climbed on board to push our cause and to help us meet our goal of walking to the Moon… This weeks Walker Spotlight is going to shine on our very own Sara Sheibley. You all might recognize her from her “Tiara Tuesday Talk” segments on WalkYourASOff.com . She is a wife and mother of 4 and has dealt with chronic illness most of… Read More »Wednesday Walker Spotlight – Sara Sheibley a.k.a. Our Sara Tiara!
Tiara’s Tuesday Talk – by Sara Sheibley Doctor’s bills? Yes we got ‘em. (To the tune of $695 and that’s only the bills I have.) Copays? They kill us. (I can’t even see some doctors because I don’t have the money for it.) Prescriptions? Cost us a small fortune. (Thank my lucky stars for insurance, I feel for those who don’t have it.) We jump through hoops for approvals for medicines, finding the ones that work best, affording appointments, affording physical therapy… The list goes on and on. What can we do? Not much because we need these things to… Read More »Tiara's Tuesday Talk – There Is More Going On Here
by Sabrina Diane Throughout this walk I’ve pushed myself out of my comfort zone to spread awareness and gather steps on a whole new level. AKA Harassing friends and family and now even strangers to join in and help us. The funny thing is with as awkward as I felt about asking these people they didn’t feel uncomfortable about it at all. They were open to listening and helping. Many of my friends and family were thrilled to have a way they could show support for me and my struggles with Ankylosing Spondylitis. Strangers felt inspired by our efforts and… Read More »Finding Steps In All Kinds Of Places!
Wednesday Walker Spotlight – Ricky by Chris Scott & Ricky White Hello Walkers!! This week’s Spotlight Walker is Team Endurance for AS, Ricky White. Ricky comes to us from the UK. Here is Ricky’s story… My AS journey started in the beginning of 2007. This was when I started to get my first symptoms. They typically manifested as ‘sciatica’ and lower back pain, which I was treated with the routine prescription of physiotherapy and NSAIDS. Initially the spells of pain were short lived and sporadic in frequency. Of course now I know that these were of course ‘flare-ups’ of my… Read More »Wednesday Walker Spotlight – Ricky White of Team ENDURANCE for A.S.